Category: autism

One of my best friends is a true activist. He stands on the barricades for equality, for better wages for workers, for a basic income, to solve the climate crisis and more. I admire that enormously. Because of my autism, I am scared to death of large crowds of people. The only moments that I dare to face them is when I can perform—be it for hundreds or even thousands of people in a church, concert hall or stadium—because then they are there and I am here, on stage: sheltered, secluded, and safe. Sometimes I blame myself for being too cowardly to stick my neck out. But then I realize that I have a softer, quieter form of resistance: my writing.

Aaaand… yet another new category for this blog, after my nickname which literally translates to “museum mouse” and incorporates my initials as well (I never understood why it is not “museummus” which would be “museum sparrow”, but anyway). For this first blog in the new category, I’ll write about some of my experiences with the Dutch museum of education, aka het “Nationaal Onderwijsmuseum”.

As an aspiring polyglot and a student of neuropsychology, I have a sweet spot for untranslatable words (from foreign or historical languages) that describe emotions, psychological states and/or behaviour. Because I got so many positive reactions about my work on hiraeth, I decided to share this interest with you by means of a new category for this blog: “Lost in Translation“. This first entry will be about the Korean concept of Nunchi, as I was recently interviewed about this by journalist Annemieke Riesebos for the Dutch magazine Grazia.

The theme for BWQ’s Spring issue is “Firsts” and I wrote a personal essay – with soundtrack! – about two of my first experiences: the first time I felt rejected, judged and excluded as a bi-romantic misfit, and the first time I felt how I could claim my place in space.

Two and a half years ago, my partner and I went to EuroBicon, the European Bisexual Conference in Amsterdam. There, I presented a paper about queer mermaids, hosted a workshop on the bisexual mermaid, played games both analog and digital, went to an awesome 80-90’s disco, had fabulous food and… met Robyn Ochs. As an academic cum activist, Robyn immediately made an indelible impression on me. Therefore, I am very happy that she invited me to write for her grassroots publication Bi Women Quarterly – aka BWQ – and that my writing even made it to the front page. Thank you so much, Robyn! With her permission, I publish the integral essay in this website.

For me, one of the most puzzling aspects of autism is still the “road-to-overload”. Sometimes the day seems like a four-lane highway that you smoothly cross over, another time you feel like rope dancing over an abyss… through snow and blizzards! But quite recently, I encountered the hashtag #spoonie, that refers to people who use the so-called “spoon theory”, a metaphor that enables users to concretise their energy levels. As it helps me, in this blog post, I share it with you in the hope that it may help you too.

After Sesame Street, Star Trek has now also added an autistic looking character to the cast. In the new series, the viewers became acquainted with Sylvia Tilly, beautifully acted by Mary Wisema. Tilly appears to be an ‘Aspergirl’, a woman with Asperger’s syndrome, a form of autism. Why is that? Is Tilly the first ‘Trekkie’ with ‘autistic’ traits? And why is it relevant at all whether there are ‘Aspies’ or other ‘autistic characters’ in Star Trek?